Hybrid Director, Patient Advocacy – Rare Oncology Disease

Posted 7 hours ago

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About the role

  • Oncology-focused Patient Advocacy Lead supporting biotech and pharmaceutical clients to implement patient advocacy strategies. Collaborating with advocacy organizations and internal teams to incorporate patient voice into clinical development.

Responsibilities

  • Supporting ICON’s rare oncology focused biotech and pharmaceutical clients to develop and implement a strong patient advocacy strategy and to incorporate the patient voice into the clinical development lifecycle.
  • Working closely with patient advocacy organizations, biotech and pharmaceutical industry clients, as well as internal ICON teams and stakeholders.
  • Interacting with client’s teams and ICON internal teams to ensure the perspective, needs, and challenges faced by rare oncology diseases are considered and incorporated into protocol reviews and study conduct planning.
  • Functioning as an extension of the client’s team to identify key relevant patient advocacy organizations, develop an engagement strategy and implement through direct liaison.
  • Supporting the Patient Advocacy team as a rare oncology disease patient advocacy strategy SME.
  • Working closely with client teams, developing and implementing patient advocacy strategies and engagement on behalf of ICON’s clinical stage, rare oncology disease focused clients aligned to client’s clinical development strategy.
  • Serving as a patient advocacy strategy SME in protocol reviews, study conduct planning meetings, proposal development and client meetings.
  • Developing patient-focused thought leadership content.

Requirements

  • RARE ONCOLOGY DISEASE EXPERIENCE IS AN ABSOLUTE MUST.
  • Undergraduate degree or international equivalent from an accredited institution is required
  • Experience working within Pharma or Biotech is in either a patient advocacy, marketing, patient services or clinical development function is required
  • Prior CRO experience is preferred
  • Demonstrated ability to develop and implement a strong patient advocacy strategy in alignment with clinical development or brand/corporate strategy
  • Strong understanding of the oncology disease patient advocacy landscape
  • Strong understanding of the guidelines governing industry interactions with patient advocacy organizations
  • Excellent presentation, communication and writing skills
  • Demonstrated ability to lead cross-functional, multi-stakeholder projects
  • Demonstrated ability to effectively navigate uncertainty and competing demands/priorities
  • Self-motivated and proactive
  • Working knowledge of all MS Office Suites (Word, Excel and PowerPoint)
  • 10-15 years of related experience preferred
  • Additional experience working directly for patient organization(s) is highly preferred
  • Occasional travel required
  • To qualify, applicants must be legally authorized to work in the United States (or Europe), and should not require, now or in the future, sponsorship for employment visa status.

Benefits

  • Various annual leave entitlements
  • A range of health insurance offerings to suit you and your family’s needs.
  • Competitive retirement planning offerings to maximize savings and plan with confidence for the years ahead.
  • Global Employee Assistance Programme, TELUS Health, offering 24-hour access to a global network of over 80,000 independent specialised professionals who are there to support you and your family’s well-being.
  • Life assurance
  • Flexible country-specific optional benefits, including childcare vouchers, bike purchase schemes, discounted gym memberships, subsidised travel passes, health assessments, among others.

Job title

Director, Patient Advocacy – Rare Oncology Disease

Job type

Experience level

Lead

Salary

Not specified

Degree requirement

Bachelor's Degree

Location requirements

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